Category Archives: Sensory Integration

Figuring out sensory integration strategies as a working musician

(This may sound like I’m plugging Henny’s book — I’m just excited about getting some answers as to why rote task-shifting can be hard for me at times. That said, if you want to support her work, by all means, do so.)

One of the things I’m working on in my creative process is how playing music (as a stim) can get intertwined with playing music (as a creative mode of production, as well as a way of making a living).

This isn’t always easy to unpack! There’s a range of different things feeding into this — alexithymia, sensory regulation, visual and auditory thinking, as well as stimming and music-making.

Further, I’m both a pianist and a composer. Both of those creative processes are very closely tied to all of the above, as well as requiring a fair amount of fluid context-shifting, from “right-brained thinking” to “left-brained thinking” and back again, or put another way: shifting from auditory processing (the internal “image” of the music) to visual processing (the score) to textual processing (letter names for the notes). I can do all of those things, but there’s times where the shift isn’t fast enough to fit within an active production schedule.

There’s tools and methodologies to work with this, as it turns out. Which is a huge relief! The usual focus is either on standard music skills-building ones (which isn’t enough, becase it doesn’t account for our neurologies), or interventions (which can be harmful).

That’s why Henny doesn’t take students who are enrolled in ABA programs anymore. Not only is it traumatizing them (and can result in PTSD), it overrides their ability to make independent decisions, as well as giving no means to cognitively process sight-reading and performance.

In other words, ABA is about “cure“, as well as denying agency, in a very direct way, with frequently disasterous consequences.

What Henny is teaching are tools: this is how you connect music in your head to notes on a page, to playing those notes. For myself, I already have a musical process, but there are areas where I’m rusty, and I have challenges in relation to very small task-based shifts in context. From the looks of things, I don’t need admistered tools, I need the tools themselves. Which I got from her book, and as I move forward, am working through and figuring out on my own.

tools vs. “cures”

TW: ABA, CBT, interventions, behavioralism, fake “cures”, restraints, institutionalization, murder of autistic youth, functioning labels

a tool is something that you control, either on your own or in conjunction with others, consensually.

a cure (including “cures” that don’t work) is a solution to a problem. it’s goal is to make whatever the presumed problem is – in this case, “autism” – go away. a cure can be chosen, but also, is frequently prescribed, if not forced or coerced.

given that autism isn’t a problem (and more specifically, a disease, injury, or despite the nomenclature, a “disorder”), but a type of neurology (as well as the social context surrounding that neurology), all “cures” for autism are in the “doesn’t work” category. some so-called “cures” may be helpful in relation to our support needs (or in the case of things like ABA, definitely not helpful) as disabled people – but again, that’s a tool, not a cure.

understanding the difference between the two is really important, especially for disabled people, as well as those who provide support for us. consider:

  • ABA: “cure”
  • toxic autism “remedies”: “cure”
  • CBT: both “cure” and tool (it depends on usage and context)
  • self-regulation: tool
  • interests: tool
  • music therapy: both tool and “cure” (although depending on the practictioner, neurological support is probably more appropriate than cure)
  • occupational therapy (OT): tool, solution/support, “cure” (especially if the OT is focused on “fixing stims”, rather than self-regulation.)

there’s a lot of bad information (and even worse practices) that come down to thinking that things that we do naturally, need to be fixed or “cured”. including in ways that can be trauma-inducing, even fatal.

this gets back to the need for self-advocacy. more specifically, support needs, as well as the ability to make our own choices about what those supports are.

consider this statement:

“”High functioning” is used to deny support.

“Low functioning” is used to deny agency.”

our support needs vary from situation to situation, over time.

the common denominator though is tools, as opposed to cures.

this is a huge issue for us, and could stand to undergo a fundamental shift in thinking. especially among allistic, ableist professionals who are providing education and support for us, but also, among each other in our community at times.

here’s to making that happen. ✊🏽

Alternatives to ABA and behavioralism

This is a first draft. (Yes, I’m trying to set something off here.) I’m especially looking for feedback from Autistics, especially ones who went through ABA or ABA-like programs in the school system. (I’m in my 50s. I went through a whole bunch of behavioralist, ABA-like experiences, including assessment, but this was before inclusion of autistic children was mandated as part of the U.S. school system’s requirements.) “Play nice”, don’t flame me or others, but please feel free to leave comments and feedback.

For Autistic students:

— You have a right to play alone.

— You have a right to your interests.

— You have a right to say “no”, and be taken seriously.

— You have a right to your stims.

— You have a right to not make eye contact.

— You have a right to move your body.

— You have right to sit where you want, and that’s yours.

— You have a right to learn.

— You have a right not to learn.

— You have a right to make mistakes.

— You have a right not to trust people.

— You have a right to interact with who you want.

— You have a right to make friends of your own choosing.

— You have a right to respect.

— You have a right to self-determination.

— You have a right to self-advocacy.

— If nobody understands what you’re asking for, find a way to tell them. (This may take some time.)

— If doing something hurts, try to find something that doesn’t hurt that works just as well. (It’s ok if you can’t.)

— If you make a mistake and people get mad, ask why in whatever way is safe, if possible. (It’s ok to make your own decisions.)

— People say and do things for reasons other than you might think. Observe, learn, and if possible, ask. (You have a right to not respond.)

For parents:

Embrace the child who is front of you, not the one that you hoped for.

Reject ABA, both at a therapist’s office or center, and at home. Being assessed and aggressed upon by teachers messed me up, but not as half as much as having compliance forced on me at home did.  (This was before ABA was formalized as school-age “intervention” under IDEA, otherwise they probably would’ve subjected me to that as well, and fucked me up even more.)

— Advocate for your child. Parent and teacher-led advocacy is one of the things that helped me break free – not from autism, but from people who kept trying to “fix” me. Presume competence.

— If your child has affirming teachers who they have rapport with – let your child know that you support those teachers, and that you disapprove of the ones that deny your child’s humanity.

— Interests aren’t talents or career paths, necessarily. They’re interests, which is enough on its own. (If they wind up being career paths or long-term pursuits, that’s fine too.)

Never demand quiet hands. (This is part of what messed me up.) Suppressing stims, echolalia and interests is abusive. If you need a time out for yourself, take it.

Aggressive behavior is happening for a reason. Center your child’s needs, not their behaviors.

— Read the section for teachers below; it’s relevant to parenting as well.

For teachers:

— Dump ABA, including the “good” ABA. ABA is conversion therapy for autistics. Torturing children for being trans or gay isn’t acceptable, torturing us for being autistic shouldn’t be, either.

— Allow students to find their own interests.

— Don’t suppress student’s stims.

Explosive behavior (hitting, kicking) is communication and self-regulation. Find out what is being said.

— If students want to play alone, let them.

— Ask students about their interests, *gently*.

— Create a welcoming environment, full of things to explore and learn about.

— Create an environment that’s focused on learning.

— What you might think is important isn’t necessarily the same as what your students think is important.

— Don’t force gender expression. Let students express themselves in ways that work for them.

— If a student is swinging their arms, and not seriously injuring themselves: take a step back.

— No restraints! Restraints are violence.

— Every Autistic student is different.

— Every Autistic student is valid.

sensory diet and musicianship

no caps for this one, says the inner dgaf editor.

i’m making progress on how the fuck to even compose anything at all because computer.

it’s frustrating that this isn’t talked about more. i started working on this actively in 2011, because i kept wanting to stim every time my hands touched an instrument, loaded a DAW or thought about either.

it took diagnosing myself to even start to get to solutions for that. i’m learning things that are either embedded in the Autistic self-advocacy literature, or that otherwise require working with an occupational therapist.

some things i’ve figured out:

  • i have to stim. a lot. if i’m not stimming, it’s usually a sign that i’m getting overwhelmed and shutting down.
  • i don’t have a single dominant mode of thinking. i’m visual-auditory-kinesthetic-analytical-sort-of-verbal.
  • bright colors help integrate sensory diet into my work. two recent examples are below.
Moog Grandmother
A photo of the Moog Grandmother synthesizer. Source: https://www.pmtonline.co.uk/yoma_press/wp-content/uploads/2018/05/moog-grandmother.jpg
A photograph of the Komplete Kontrol MK2 keyboard controller.
A photograph of the Komplete Kontrol MK2 keyboard controller. https://s3.amazonaws.com/factmag-images/wp-content/uploads/2017/10/komplete-kontrol-mk2-screens.jpg
  • music pulls together multiple interests of mine, and they exist both independently and inter-dependently. i have to honor all of those interests, or things like “i need to buy all the drum machines” or “why do i love this hardware even though it doesn’t work for me as a producer” or “arrgh, i’ll just watch steven universe instead” start happening. this is a daily thing for me. it actively interferes with my ability to work, if i don’t integrate it.
  • there’s also subtle (and obvious) forms of stigma with liking things that have loud colors and note guides, especially among serious and professional musicians and producers. it can get viewed as being amateurish or unprofessional or corny, and i have to watch out for that sort of negative self-talk as well, because i’m undermining myself as a creative worker when i buy into it.

unsurprisingly, this leaves little energy for anything else, if left unchecked. so then, i’m either in sloth mode, starting to melt down more, or really, really bitchy. which affects my ability to interact with other people, neurotypicals and some neurodivergent non-autistics especially.

the “hidden curriculum” for interacting with neurotypicals comes up regularly, but what doesn’t get covered as much is what gets hidden from us, about us. all the more if you’re undiagnosed, or your diagnosis was suppressed. like i said earlier, i had no way to know until i did a lot of digging. it’s frustrating.

i’m relieved to be getting real answers though, even if it’s meant piecing together things on my own (and working to not get upset over the lack of good ‘by us, for us” materials that aren’t neurotypical-centric or patently false). i’m getting there.